Life’s a Journey With CP and Me

Hi Everyone!

Katy FettersKaty here, a local college student who is always writing, sharing, and learning about cerebral palsy since I also have CP!

I just recently participated in the World CP Challenge, a global, month-long fundraiser that works to raise awareness and educate participants about CP. In addition, participants dedicate this entire month to their own health and fitness: in teams of four, we climb seven virtual mountains all over world with a pedometer step count! As the leader of Team TeenCP, I am happy to say we completed our second year doing the challenge. This year was more successful for us with steps, but fundraising was a bit difficult due to the competitive nature of the challenge in my community! (What a good problem to have, though.)

While I can’t do as much running and walking as I used to, what is great about this fundraiser is that you can still gain “steps” for your team no matter the activity! Biking became my main mode of exercise for the challenge and I always felt so great after logging in my steps for my team to see our progress! Another plus, is that the CP CP_Challenge_logoChallenge really allowed me to feel more in-tune with my physical health and I have been able to keep up with consistent cardio and strength training because I feel so great after a hard work out! I hope others who did the challenge feel the same way. What I also loved about this year was that the challenge ended on World CP Day (Oct. 2), so as a great send off, I was able to speak toward some young adults that I know who have CP and urge them to share something about their own experience with having a physical disability. What an empowering movement I get to be a part of! Team TeenCP will look forward to a stronger, better fundraiser for the fall of 2014.

My parents, Paul and Carolyn Fetters, owners of The Training Spot in Huntington Beach have supported UCP-OC for quite some time now, and this is the second World CP Challenge that they, their personal trainers and committed clients have also participated in the fundraiser. A gym or fitness center is a great environment to host something like the World CP Challenge because it encourages members and clients to get active for such a great cause (and something so personal to our family.) Overall, we are happy to be a part of the challenge in the coming years because of its positive message, results, and awareness for the local community and UCP-OC. Thanks UCP National for bringing the World CP Challenge to the United States!

Until next time,
Katy

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Upcoming UCP-OC Events!

WOD for Wyatt

  • Saturday, March 2nd
  • 11:00am-2:00pm
  • 22600 Lambert St.
    Suite 1203
    Lake Forest, CA 92603

For children with developmental disabilities like cerebral palsy, simple tasks like standing, walking, and writing require hard work that takes them out of their comfort zone. To honor these children, we are proud to present the WOD for Wyatt – a CrossFit workout where all proceeds will help United Cerebral Palsy of OC provide therapy services to children in need. There are individual workouts and team/family workouts. For more information on the workouts and to register please visit legendary competitor. $20 Donation to Register! And free event T-Shirt.

http://www.legendarycompetitor.com/events/wod-for-wyatt

Have a Heart for UCP: Fashion Show

  • Saturday, March 2nd
  • 10:30-1:00pm
  • Embassy Suites in Brea
    900 East Birch St.
    Brea, CA

http://www.ucp-oc.org/UCP/event_details.php?id=108&type=1 

Sea & Sky Guild’s Casino Royale

  • Saturday, March 9th
  • 6:00pm-11:00pm
  • Crevier Classic Cars
    365 Clinton St.
    Costa Mesa, CA
  • $125 per ticket

 http://www.ucp-oc.org/UCP/event_details.php?id=107&type=1

The Sea and Sky Guild of United Cerebral Palsy of Orange County (UCP-OC) will present their Evening in Monte Carlo Casino Royale Fundraiser on Saturday, March 9 at Crevier Classic Cars in Costa Mesa.  An evening highlight is honoring Afshin Aminian, M.D. with the organization’s Humanitarian Award. Dr. Aminian is the Medical Director CHOC Children’s Orthopaedic Institute and an internationally renowned pediatric orthopaedic surgeon who offers invaluable medical expertise and support to children with disabilities at UCP-OC.

Life Without Limits Gala 60th Anniversary Celebration

  • Honoring Michael K. Hayde
    CEO, Western National Group
  • Friday, May 10th
  • 6:30pm
  • Balboa Bay Club & Resort
    1221 Coast Highway
    Newport Beach, CA
  • $250 per ticket

http://www.ucp-oc.org/UCP/event_details.php?id=106&type=1 

Come spend an evening with us as we celebrate our 60th Anniversary while honoring Michael K. Hayde. Spend an evening with our UCP-OC family and donors as we raise money for the children and families that we serve throughout Orange County.

Team Jake: OC Marathon–VOLUNTEER OPPORTUNITY

  • Sunday, May 5th
  • Newport Beach, Fashion Island
  • Join us at the Water Station to cheer on our Team Jake Runners
  • Join Team Jake & walk or run for all the children served by UCP-OC and to celebrate Jake Robert

http://www.ucp-oc.org/UCP/event_details.php?id=46&type=1

OC Marathon is coming

Orange County Marathon benefitting UCP-OC!

May 5, 2013

ocm_marathon_logo

What better way to start off your New Year by signing up to participate in the OC Marathon, running or walking to support UCP-OC?!

For the 7th year Team Jake will be running in the 5K, half and full marathon in support of UCP-OC and the difference being made in the lives of children with disabilities. Run/walk towards the common goal of raising funds and awareness for UCP-OC.

There are 3 main ways you can get involved:

  1. Run/Walk
  2. Volunteer
  3. Donate

Who is Team Jake?

“Team Jake is a group of runners, walkers, fans, and volunteers who help us embrace the OC Marathon event and all that it means to our family.  January 8th, 2006 I ran my first marathon.  I ran to honor my son Jake, to raise money in support of United Cerebral Palsy of Orange County, and to “cross something off the list”.  The entire Robert/Holman family waited patiently for my finish and we spent the afternoon together celebrating a rather unimpressive finish; but the OC Marathon had given us reason to spend the day together.  We did not realize what an amazing gift that was until the next morning when we discovered that our precious son, Jake Ryan Lee Robert, our four and a half year old boy with Cerebral Palsy had passed away in his sleep. 

 Team Jake was born. 

Since then, each year our amazing network of family, friends, and numerous friends and family of friends have joined us. Each year brings new runners, new fans, new memories and an enduring sense that the wonderful spirit of Jake lives on.”

Steven & Alison

 

For more information please go to the event page on our blog, on our website or contact Elizabeth Wylie ewylie@ucp-oc.org.

Holiday Fundraising Update

Thank You!

It has officially been 1 month since we kicked off our Holiday Campaign, and we have been humbled by the incredible support and gifts our families and past donors have shown.

So far a total of 45 families have contributed, and we have received $18,000 through the generosity of those who were touched by Granden’s family’s story. Just today we received a very generous gift of $10,000!

If you have not had the opportunity to see the family’s video I would like to invite you to view it below. Thank you for your continued support of our organization. Please consider making a year-end donation to UCP-OC, any amount that is meaningful to you is greatly appreciated.

*to make a tax-deductible year-end gift please click here.

If you have any questions or would like to learn more about how you can get involved at UCP-OC please don’t hesitate to ask me.

Thank you,

Elizabeth Wylie

ewylie@ucp-oc.org