February Brave Kids Newsletter

Monthly UCP-OC receives the UCP Brave Kids Newsletter and we then pass it along to our families, friends and professionals throughout the community. Brave Kids, a program of the United Cerebral Palsy National Office, provides a support community and resources for children and youth, ages 6 – 17,  with disabilities and chronic/life-threatening illnesses and their families and caregivers.

Twin Sisters Who are Hearing Impaired Connect with Super Bowl-winning Player

Twin sisters Erin and Riley Kovalcik, who are partially deaf due to a genetic condition, received a great surprise earlier this month when they met Seattle Seahawks player Derrick Coleman. Coleman caught the attention of millions of people, including the nine-year-old twin sisters from New Jersey, when a Duracell commercial featured his journey of becoming the first legally deaf player in the National Football League (NFL). After one of the sisters wrote an encouraging letter to the star player, their father posted a picture of it on Twitter and sent it to Coleman. “Really was great hearing from a friend who I have so much in common with,” replied Coleman. “Even though we wear hearing aids, we can still accomplish our goals and dreams!” Despite his hectic schedule in preparing for the Seahawks appearance in the Super Bowl, Coleman went the extra mile to connect with Erin and Riley– surprising them in-person and inviting the girls and their family to attend the big game. Click here to see the full story!

If you would like more information about hearing loss, visit United Cerebral Palsy’s My Child Without Limits  website.

Firefighter Teaches Safety for Children with Autism

Massachusetts Firefighter Lance Mason is working hard to educate people on fire safety for children with autism. Mason began his program nearly a decade ago, after his now 12-year-old son was diagnosed with autism spectrum disorder. His program raises awareness about how a person with autism may not react to emergency situations the same way as someone without autism would, and how to help them safely. It includes addressing the role of a caregiver in preparing a loved one with autism, home fire safety and more. Click here to read more.

More information related to fire safety and people with disabilities can be found on the UCP National website. Click here to check it all out.

Student with Cerebral Palsy Receives One-handed Flute

Twelve-year-old Melissa Henricks, who has cerebral palsy and difficulty using her left hand, always dreamed of playing the flute, which is typically a two-handed instrument. Kevin Smith, band director at Selvidge Middle School in Ballwin, Missouri, where Henricks attends, helped to make that dream a reality. Together with his wife and school district, Smith was able to create a custom-made, one-handed flute for Melissa. “It’s amazing how wonderful he could be to make this for me,” said Henricks. But Smith did not stop there– he then constructed a new fingering chart for Henricks to learn her new instrument during their winter break! Click here to read more!

Past article you might have missed…Artist Gives New Look to Disney Princesses
disney28n-14-webItalian artist and fashion critic Alexsandro Palombo gives Disney princesses a new look in his latest piece. The characters are portrayed as women with disabilities in various ways, ranging from Princess Jasmine shown as a double amputee to Cinderella fitting her glass slipper on a prosthetic. Click  here to read more!

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