OC Marathon is coming

Orange County Marathon benefitting UCP-OC!

May 5, 2013

ocm_marathon_logo

What better way to start off your New Year by signing up to participate in the OC Marathon, running or walking to support UCP-OC?!

For the 7th year Team Jake will be running in the 5K, half and full marathon in support of UCP-OC and the difference being made in the lives of children with disabilities. Run/walk towards the common goal of raising funds and awareness for UCP-OC.

There are 3 main ways you can get involved:

  1. Run/Walk
  2. Volunteer
  3. Donate

Who is Team Jake?

“Team Jake is a group of runners, walkers, fans, and volunteers who help us embrace the OC Marathon event and all that it means to our family.  January 8th, 2006 I ran my first marathon.  I ran to honor my son Jake, to raise money in support of United Cerebral Palsy of Orange County, and to “cross something off the list”.  The entire Robert/Holman family waited patiently for my finish and we spent the afternoon together celebrating a rather unimpressive finish; but the OC Marathon had given us reason to spend the day together.  We did not realize what an amazing gift that was until the next morning when we discovered that our precious son, Jake Ryan Lee Robert, our four and a half year old boy with Cerebral Palsy had passed away in his sleep. 

 Team Jake was born. 

Since then, each year our amazing network of family, friends, and numerous friends and family of friends have joined us. Each year brings new runners, new fans, new memories and an enduring sense that the wonderful spirit of Jake lives on.”

Steven & Alison

 

For more information please go to the event page on our blog, on our website or contact Elizabeth Wylie ewylie@ucp-oc.org.

Welcome to the Digital Age

We are very excited about what is in store at United Cerebral Palsy of Orange County in 2013! We are not only serving more children but we are DOING OUR BEST to enter into the digital age.
We understand that our parents, donors and staff live a majority of their lives “plugged in” and we want to ensure that our stories are told and get to you in a way that is easy for you!

So here’s a little of what we are doing this year:

  1. Entering the App World!!
  2. We are making supporting UCP-OC easy by fundraising through apps on your phone. Check out Communities for Cause http://www.communitiesforcause.com to see how your everyday purchases can impact UCP-OC.
  3. Did you know we are on Yelp? –We would love for you to tell others about your experiences at UCP-OC.
  4. Updating our website to make it easy to navigate.
  5. Sharing relevant news in the special needs community!

We would love to hear your thoughts and opinions, so please leave us a comment. How else do you see us entering the digital world.

 

Coming up next week: Holiday Fundraising Update!

Hot Off the Press: UCP News!

Disability Update

  • Large share of ED visits made by adults with disabilities.
    Nearly 40% of emergency department visits in the U.S. involved working-age adults with disabilities, NIH researchers reported in the journal Health Services Research. An analysis of the Medical Expenditure Panel Survey found that the severity of a disability’s limitations correlated with greater use of emergency departments as did lack of access to primary care. Nurse.com (1/2)        
  • Illinois lawmaker will file bill to protect adults with disabilities
    An Illinois lawmaker said he will introduce a bill that would create an Adult Protective Services unit overseen by the state’s Department on Aging, which would be responsible for protecting home-bound adults with disabilities. Gov. Pat Quinn called for reforms to strengthen protections after a report said the state failed to investigate the deaths of 53 adults with disabilities. Belleville News-Democrat (Ill.) (1/2)        
  • Other News
  • Unemployment rate for people with disabilities declined for 4th consecutive month
    Disability Scoop (1/7)        

Assistive Technology

  •  Books for the visually impaired offer support for other disabilities
    Students at Toyon Elementary in San Jose, Calif., who have trouble decoding print are finding help in the form of accessible digital books that were originally created for people who are visually impaired. The books have an operating system that reads the text aloud and offers audio-based reference points. “All of my students have really high comprehension, and they get it,” special-education teacher Tammy Irvine said. “They just can’t access the print.” KQED.org (1/3)        
  • IPad helps Pa. woman find more independence
    Kelly Berta, a 24-year-old Pennsylvania woman with apraxia of speech and arthrogryposis, a disease that affects her muscles, is using an iPad to communicate with people outside of her immediate family. Berta’s speech difficulties led her to develop her own language that her mother understands, but the iPad and its applications allow her to use icons to express her thoughts to others and gain more independence. “This gives her a way to say things in a way that everyone can understand,” Carrie Kane, a speech-language pathologist, said. The Morning Call (Allentown, Pa.) (12/31)        
  • Other News
  • Maine teachers use tablets in lessons for students with disabilities
    Bangor Daily News (Maine) (free registration)/The Forecaster (1/2)        

Transitions

UCP News

  • UCP announces $25,000 innovation contest
    Are you, or is someone you know, an inventor? United Cerebral Palsy has announced $25,000 in prize money to anyone who can create one of the three winning ideas submitted to the World Cerebral Palsy Day’s “Change my World in 1 Minute” contest. Established to raise awareness, and help improve mobility, independence, accessibility, communication or social connections for people living with cerebral palsy, UCP is now seeking to bring the three winning “Change my World in 1 Minute” entries to life. Learn more about the three ideas and how you can get involved.        
  • UCP welcomes new year of growth and progress
    In this month’s “Full Spectrum” newsletter, UCP President and CEO Stephen Bennett welcomes 2013 and the opportunities it will bring for UCP, particularly for the Public Education and Outreach and Life Labs initiatives. Learn more about UCP, our goals for the new year, our affiliates’ success stories, and much more in this month’s newsletter.