My Child Without Limits December Newsletter

The holidays are upon us! Here are some good tips for the holidays and we found the piece about preemies very interesting.

Preemies are Still Facing Severe Disabilities
Despite healthcare and medical advances between 1995 and 2006, virtually the same percentage of babies born premature in those years developed some type of severe disability. The good news is that the survival rate between these years has increased by 11%. While it does seem like we are moving in the right direction, what else can the healthcare industry do to improve the lives of extremely premature babies? To find out more information on this subject click here.

Stay Safe this Holiday Season
Are you feeling overwhelmed this holiday season? From getting the house ready for the holidays to buying gifts for friends and relatives, it is very easy to forget about important safety concerns. Fires cause extensive damage around the world during the holiday season because people forget to keep safety in mind. Here are a couple steps you can take to make sure you have a fun, safe holiday season:
•Water your tree- A dry tree can be a fire hazard, especially with hot Christmas lights wrapped around it.
•Check your lights- double check the sockets and light bulbs for damages and wear as they pose a fire threat as well.
To see more holiday safety tips check out the full list here.

Finding the Perfect Gift
When the holidays arrive, all children anxiously await opening the perfect gift. But finding that gift for a child with disabilities can be intimidating. By taking a minute to consider the child’s abilities and developmental age, you can make an informed choice and provide the child(ren) in your life with pure delight as they open that special toy!

Fortunately, resources are available to help you find that gift. Check out the websites below for tips on what to consider when making that selection:

2012 Toys “R” Us Toy Guide for Differently-Abled Kids
Choosing Gifts for a Child with Special Needs
Infinitec Adaptive Toys Guide

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UCP News Brief

This week many of interesting articles have caught my eye, and although I posted a couple of them on our Facebook page I thought I would share them with you all in one place.  A few of these came from the UCP SmartBrief, so as I receive the SmartBrief monthly I will make sure to share it with you on the blog. This is a compilation of the top 10 stories and I thought many of you would benefit from reading them.
So please scroll through and look at a few that interest you!  Please leave us a comment with your opinions!
-Elizabeth Wylie

 

Disability Update

  • Psychiatric group OKs changes to diagnostic manual
    The American Psychiatric Association’s board of trustees approved Saturday the fifth edition of its diagnostic manual for mental conditions. The guide includes Asperger’s syndrome and “pervasive developmental disorder, not otherwise specified” in the autism spectrum disorder category, and introduces a diagnosis of “disruptive mood dysregulation disorder” for children. Bloomberg (12/2), The Wall Street Journal (12/1)     
  • Disability hiring rule would be costly
    The Department of Labor’s proposed disability hiring rule will be costly for companies, writes Sara Cann. A study by the Associated General Contractors of America found that an average-sized construction firm would need to spend about $14,000 annually — for each project site — nearly 30 times the DOL’s estimate of $473. Fast Company magazine (11/2012)     

Other News

Assistive Technology

  • Website supports better library access for students with disabilities
    A new website offers librarians a self-paced online curriculum of videos, games and assessments to help them better meet the needs of students with disabilities. Project ENABLE (Expanding Nondiscriminatory Access by Librarians Everywhere) was developed by Ruth V. Small of Syracuse University’s School of Information Studies after she conducted a survey of school librarians and found that they gave themselves low scores in the area of disability services. School Library Journal (11/30)     
  • Scientists design robots for individuals with disabilities
    Two scientists, Kaijen Hsiao and Matei Ciocarlie, at Willow Garage in Menlo Park, Calif., are developing robots to help individuals with disabilities be more independent in their homes. Still in the design stage, Hsiao and Ciocarlie are working with an individual with quadriplegia, on designing a robot to do basic household tasks, such as getting food from the refrigerator. San Jose Mercury News (Calif.) (free registration) (12/1)     
  • As online videos rise, those hard of hearing seek captions
    Videos are increasingly prevalent on the Internet, leaving out many people who cannot hear or are hard of hearing. Advocates for people who are deaf are seeking regulations requiring websites such as YouTube and Netflix to provide content captions. Some sites already are making content more accessible with automated captioning software. “Access to information has been labeled as a civil right,” said James House, public relations director for Telecommunications for the Deaf and Hard of Hearing. The Washington Post (11/28)     
  • Other News

Transitions

UCP News

  • Progress on the Convention on the Rights of Persons with Disabilities
    United Cerebral Palsy and a broad coalition of disability organizations are working together to get the U.S. Senate to ratify the Convention on the Rights of Persons with Disabilities. This week, Senate Majority Leader Harry Reid called the treaty up for a vote! Learn more about the treaty and join in UCP’s efforts to finally ratify the CRPD.     

United Cerebral Palsy and #GivingTuesday
On Tuesday, Nov. 27, United Cerebral Palsy, the Huffington Post and other organizations observed the first annual #GivingTuesday, a day after the Black Friday and Cyber Monday shopping rushes, dedicated to raising support for philanthropic causes. UCP President Stephen Bennett sheds light on what this support looks like for people living with disabilities and the difference even a small donation can make. Read Stephen’s story and learn more about how to take part in #GivingTuesday.     

Child of the Month: December 2012

December 2012: Wyatt

This month we are celebrating Wyatt, AND we want to share with you his video. In this video you can see his family’s journey and the difference UCP-OC has made in Wyatt’s life.

Please consider making a gift to UCP-OC this season to make a differentce in the life of a child. You can make your gift at www.ucp-oc.org/give.