17th Annual Life Without Limits Golf Tournament

Monday October 24th marked the 17th Annual Life Without Limits Autumn Golf Classic!

Over 120 golfers and supporters of UCP-OC came out to participate and raise money for UCP-OC. The tournament’s founding sponsor was DLD Insurance Brokers Inc. whose CEO Dana Dowers came up with the idea almost 20 years ago.  Tournament Chairman, Scott Pievac, CEO of SPC Retail Display Group welcomed the guest before the shotgun start.

Other tournament sponsors included Gibson Dunn & Crutcher, Sidley Austin LLP, Bryan and Mary Ann Bentrott, Dorsey Whitney, Ernst & Young, The John Harvey Company Insurance Services, Paul Hastings, KPMG, OM Foundation, PricewaterhouseCoopers, Select Staffing, Samuelsen, Gonzalez, Valenzuela & Brown, Tidalwave Finance, VOIT Real Estate Services, WLA Investments and 1st Enterprise Bank.

 The golfers were met with games on the course, a Superformance Cobra donated by Lance Standerand Hillbank Motor Corporation, Superformance and Shelby Distributionas a Hole-in-One prize and a good competitive game. After the golfers finished their round of golf they were entertained at the cocktail hour with a riveting putting contest, where the winner won a new putter.  Shortly after, the dinner, auction and opportunity drawing took place. A one week’s stay at “Hacienda de Mita,” a breathtaking 3,300-square foot ocean-front luxury condominium in Punta Mita, Mexico was the opportunity drawing package won by Richard Borkowski.

Emery Financial was another proud sponsor of the Tournament. VP of Sales, Adam Heaney says his highlight of the day was listening to Scott Pievac’s story about how his daughter, Brianna has greatly improved her quality of life with the love and support of family and organizations like UCP-OC. He even created a video to share with us to remind everyone why we all gathered on the beautiful October day.

The Auction raised $14,200,  and through a heart touching paddle raise many participants stepped up to fund a child raising more than $10,500! A grand final total of $132,600 was raised during the day. 

All in all it was a great day to be out on the Links supporting UCP-OC. Thank you to all who participated, and if you did not make sure to mark your calendars for next year! For more information please contact Robin Walker at rwalker@ucp-oc.org

  

DLD Insurance Brokers CEO Dana Dowers and guest

SPC Retail Display Group Owner Scott Pievac and guest

Voit Real Estate’s Team

UCP-OC’s CEO Cathy Collins in the Hole-in-One Car ready to start the day!

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Life’s a Journey With CP and Me

 Hi UCP-OC!

I am now half way through my first semester of college here at Soka and finding it a bit easier each week! I am learning to take everything day by day, because there really is no use in getting ahead of myself. For those of you who don’t know me, I can be quite the worrier and I will tell you from experience, worrying over things that are out of your control is a waste of time and energy!

I want to talk to you today about what it is like going to college apart from my twin sister, Sara. A lot has been on my mind lately about learning how to be on my own, and I am really struggling with being apart from Sara during my time here. Fortunately I am able to go home and see her, but I think what I am struggling most with is the fact that we are now leading our lives independent of each other. My sister and I are pretty dependent on each other for the most part, we have grown up together, shared everything, and have looked out for each other every single day of our lives. Sara does not have CP and I think that is part of the reason why I am struggling more so than her. She has always been my “protector” in a way. Now that I am in college and she is in cosmetology school, I worry sometimes that I cannot do this without her.

Well back to what I mentioned earlier about worrying, I am realizing that this is such an unnecessary worry of mine. I know that I am perfectly capable of performing well in school, and making friends, but there is always that doubt in the back of my mind that makes me feel like no one could possibly understand, or want to understand what it is like to have CP like my sister did.

I guess these things take time right? I know I will get to a place of security and comfort, but right now I am just trying to focus on the fact that I was the one who got myself into this college, not my sister, not my parents…I did. There is something to be said for that, it will just take some time for me to digest that..  I am not trying to get all down in the dumps here today, I just know that there are some of you out there with twins, or who is a twin and maybe my thoughts, doubts, and worries will relate to you one day, and help you better understand this “twin dynamic.”

I think that is all for me today! I hope you all are having a great October month and enjoying this warm weather.

All the best, Katy

Babysitting Bridget

The Music Addition

 

 

 

Written by: Ellie

 Bridget, Cathy and I were on my front doorstep a few weekends ago, and Bridget was excited. I didn’t actually realize why until Cathy said the word “piano”. Immediately, Bridget began clapping and repeating “piano, piano!” The door opened, she reached towards the bench, and we could not put her down fast enough! She immediately picked out two or three keys to stroke repeatedly. Luckily with Bridget concentrating on her music, there was no trouble with mom leaving.

  The music she plays, although it is without substance, is amazing to me. It was as if while in her concentrated state, her brain just opened, using both hemispheres together. When she would take a break, I would point to a letter in the word Yamaha, inscribed on the piano, and she could tell me which letter it was. So, I would point to the Y and Bridget would say, “Y is for yak”. I was astonished at her sudden ability to spell. I believe that the music she enjoys, awakens her cognitive abilities and brings her other knowledge to the top of mind. All I know is she is a smart cookie, and that is for sure!

We eventually moved upstairs to what I am convinced is one of her favorite places on the planet—my thirteen-year-old sister Lucy’s room. It has something to do with the bounciness of Lucy’s bed. When we set Bridget up there, she immediately sits on her knees and bounces, and bounces, and bounces. And, when the iPod is blasting Miley Cyrus’s “Party in the USA”, she laughs and smiles and sings. Trust me, we have done this enough times to where she now knows every single word to the song. And the singing, well she will sing that song to her heart’s content. I don’t know how she does it, the bouncing, singing, laughing and smiling all at once. I’ve tried, and let’s just say after about the fourth bounce, I wasn’t feeling so great.

Despite her apparent disabilities, there is more to Bridget that many people don’t see. Unless she is truly comfortable, we often don’t see how brilliant she really is. And it’s funny that music, such a common pastime for us, can be a vehicle used to show how much she really knows. It is truly a beautiful thing!

 

 

October Child of the Month: Alexa

Alexa

Alexa is an 18 month-old with the cutest pony-tails on the top of her head. Her smile melts your heart and you cannot help but smile back! Even better, Alexa knows exactly what to do when a camera is present. Lights, camera, action…she’s a star! Alexa even knows how to perform behind a camera too! While I was taking pictures of her, she took my camera and started taking pictures of herself, simply adorable.

Alexa has hypotonia, which means she has low muscle tone and hyper extension in her limbs. At six months the family saw that she had trouble bearing weight, and went to see a doctor. After many tests and a diagnosis, Dr. Lin suggested the family come to UCP-OC. Her mother only says great things of our Therapy Center and loves that Melanie and Jeanne tell her what to do at home and that it is a professional organization with a kid friendly atmosphere.

Alexa attends UCP-OC for physical therapy with Melanie, and speech therapy with Jeanne. Who knew physical therapy could be so fun?! Alexa’s physical therapy started with the tire swing so she could work on standing with support, then went into the ball pit to work on strengthening her core, next she went to the piano and started playing (hitting) a lovely melody and that was all in just the first 5 minutes! During her speech therapy Jeanne works with Alexa to start making sounds and introduce words to her vocabulary. Singing the words allows Alexa to hear the sound each letter makes, so that learning new words becomes easier. In just a short 10 months they have seen her start pulling up, taking steps and strengthening her core. Alexa certainly will live a Life Without Limits!

 “Watching her grow is a huge blessing even in the 10 months we have been here.”

-Anna, Alexa’s Mother

  

(This last picture Alexa took herself with my iPhone. Too cute!)

Elizabeth